Telling It Like It Is – Experiences of Older People at End of Life
Telling It Like It Is – Experiences of Older People at End of Life report, published by the Alliance of Age Sector NGOs and the Irish Hospice Foundation, draws on findings from the National End of Life Survey (2024) to explore the experiences of older people, their families, and carers during dying, death, and bereavement. With most deaths in Ireland occurring among those over 80, the report identifies key factors shaping end-of-life experiences, including communication, timely access to healthcare professionals, community-based care, and bereavement support.
Confidence and trust in healthcare staff emerged as the most influential factor affecting quality of care across all settings. However, geographical disparities, limited out-of-hours GP services, and inconsistent coordination between care settings remain significant challenges. Many older people wish to die at home, yet access to essential support services varies widely. Families highlighted the importance of clear, compassionate communication from healthcare professionals and greater access to bereavement support.
The Alliance calls for the establishment of an Independent Commissioner for Ageing and Older People to ensure accountability, policy implementation, and equal access to high-quality end-of-life care. Eleven recommendations are outlined, including enhanced staff training, improved GP availability, proactive bereavement support, and further research to inform future policy.
Ultimately, the report emphasises that every older person has the right to be informed, supported, and treated with dignity at the end of life — ensuring that Ireland becomes a place where people can both live and die well.
